Location: Madrid, Spain
Date: 02 Feb.
FESCA acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organizations, while the support of individual sufferers of scleroderma remains the sole remit of national organizations.
FESCA's objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care. To do this, FESCA facilitates collaboration among national associations to share ideas and projects, and works towards the evolution of a political, social, and medical enviroment that facilitates the achievement of the FESCA vision.
Orion Pharma (www.orion.fi/en/), a pharmaceutical company based in Finland, would like to receive information (known as feedback) about Raynaud’s phenomenon from people suffering from this co
ESOS is a new study funded as part of the EULAR Orphan Disease Programme and co-ordinated by the University of Manchester in the UK.
Please send your answers for the following questions to Caterina Leite on following e-mail: associacao.apde@gmail.com. Or please follow this link to go to the survey link for your country. Thank you.
Patients with any rheumatic disease are asked to participate in a questionnaire study on the internet.

The Second World Scleroderma Patient Congress will be held on February 2nd - 4th,
Scleroderma Day will be celebrated across Europe, Australia, the USA, Brazil and other countries for the third time in order to raise awareness for the scleroderma and for people with sclerode
The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in London.
Our 5th FESCA Annual Assembly will be held from Thursday 31th March until 2nd April 2011 in Budapest, Hungary. Venue: Hotel Korona Mercure.
Scleroderma Day will be celebrated across Europe for the second time in order to raise awareness for the scleroderma and for people with scleroderma.
The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in Rome, stand n° C8-5, total 9 m2.
Our FESCA Annual Assembly will be held at the time of the World Congress, on Saturday February 13, from 10am until 4 pm. Further information will coming soon.
In February 2010, a World Scleroderma Congress will be held in Florence.