FESCA

Federation of European Scleroderma Associations

Upcoming events

2nd Scleroderma World Congress

Location: Madrid, Spain
Date: 02 Feb.

FESCA acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organizations, while the support of individual sufferers of scleroderma remains the sole remit of national organizations.

FESCA's objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care. To do this, FESCA facilitates collaboration among national associations to share ideas and projects, and works towards the evolution of a political, social, and medical enviroment that facilitates the achievement of the FESCA vision.

EULAR CONGRESS 2011

02 Jun.

 

Survey into treatments for Raynaud's

19 May.

Orion Pharma (www.orion.fi/en/), a pharmaceutical company based in Finland, would like to receive information (known as feedback) about Raynaud’s phenomenon from people suffering from this co

European Scleroderma Observational Study (ESOS)

07 Feb.

ESOS is a new study funded as part of the EULAR Orphan Disease Programme and co-ordinated by the University of Manchester in the UK.

Characterization of Psychosocial Symptoms and Illness Perception in People with Scleroderma

22 Jan.

Please send your answers for the following questions to Caterina Leite on following e-mail: associacao.apde@gmail.com. Or please follow this link to go to the survey link for your country. Thank you.

What does having scleroderma mean to you?  How does scleroderma affect your life?

SEEKING PARTICIPANTS TO FILL OUT A QUESTIONNAIRE ON UNDERSTANDING AND LACK OF UNDERSTANDING FOR RHEUMATIC DISEASES

20 Jan.

Patients with any rheumatic disease are asked to participate in a questionnaire study on the internet.

2nd Scleroderma World Congress

Location: Madrid, Spain

02 Feb.

The Second World Scleroderma Patient Congress will be held on February 2nd - 4th,

International Scleroderma Day, June 29th

Location: All over the world

29 Jun.

Scleroderma Day will be celebrated across Europe, Australia, the USA, Brazil and other countries for the third time in order to raise awareness for the scleroderma and for people with sclerode

EULAR Congress, London

Location: London, UK

25 May.

The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in London.

FESCA Annual Assembly

Location: Budapest, Hungary

31 Mar.

Our 5th FESCA Annual Assembly will be held from Thursday 31th March until 2nd April 2011 in Budapest, Hungary. Venue: Hotel Korona Mercure.

XVII Giornata italiana per la Lotta alla Sclerodermia

Location: Aula Magna Università di Milano, via Festa del Perdono 7

19 Mar.

2ND EUROPEAN SCLERODERMA DAY - JUNE 29TH

Location: in member countries

29 Jun.

Scleroderma Day will be celebrated across Europe for the second time in order to raise awareness for the scleroderma and for people with scleroderma.

16 Jun.

The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in Rome, stand n° C8-5, total 9 m2.

FESCA Annual Assembly

Location: Florence, Italy

13 Feb.

Our FESCA Annual Assembly will be held at the time of the World Congress, on Saturday February 13, from 10am until 4 pm. Further information will coming soon.

11 Feb.

In February 2010, a World Scleroderma Congress will be held in Florence.