FESCA

Federation of European Scleroderma Associations

Upcoming events

2ND EUROPEAN SCLERODERMA DAY - JUNE 29TH

Scleroderma Day will be celebrated across Europe for the second time in order to raise awareness for the scleroderma and for people with scleroderma. You can see the activities from last year here.

Location: in member countries
Date: 29/06/2010

EULAR Congress, Rome, Italy 16th-19th June (Wednesday to Saturday)

The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in Rome, stand n° C8-5, total 9 m2. FESCA will hold board meeting and all other members are welcome in the Congress where awareness will be raised for FESCA and the upcoming Scleroderma Day - June 29.

Location: Rome
Date: 16/06/2010 - 19/06/2010

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About us and our work

FESCA acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organizations, while the support of individual sufferers of scleroderma remains the sole remit of national organizations.

FESCA's objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care. To do this, FESCA facilitates collaboration among national associations to share ideas and projects, and works towards the evolution of a political, social, and medical enviroment that facilitates the achievement of the FESCA vision.

Our latest news

RARE DISEASE BLOG – INTERNATIONAL OPINION ON RARE DISEASES AND ORPHAN DRUGS

07 Feb.

A new tool has joined the arsenal of instruments geared toward raising awareness and discussing the issues pertinent to rare diseases and treatments.

1ST SYSTEMIC SCLEROSIS WORLD CONGRESS

09 Jul.

European Scleroderma Day - June 29

29 Dec.

The first European Scleroderma Day on the 29th June 2009 was celebrated in almost all of our member countries as it was decided by the FESCA in a year ago.

The Edgar Stene Prize Competition

28 Dec.

The Stene Prize winner 2009 from Finland: Emmi Myöhänen

Scleroderma is among EULAR strategic objectives 2012

27 Dec.

By 2012, EULAR will have strengthened activities in areas that are currently less prioritized, such as non-inflammatory and orphan diseases.

Newsletters:

Calendar of events

2ND EUROPEAN SCLERODERMA DAY - JUNE 29TH

Location: in member countries

29 Jun.

Scleroderma Day will be celebrated across Europe for the second time in order to raise awareness for the scleroderma and for people with scleroderma. You can see the activities from last year here.

EULAR Congress, Rome, Italy 16th-19th June (Wednesday to Saturday)

Location: Rome

16 Jun.

1ST SYSTEMIC SCLEROSIS WORLD CONGRESS

Location: Florence

11 Feb.

In February 2010, a World Scleroderma Congress will be held in Florence. This will be a dual event, consisting of a 3-day congress for doctors, and a one-day event for patients at which rheumatologists will address issues of interest to people who have scleroderma.

Dates of medical congress: February 11, 2010 - February 13, 2010

Date of patient congress: Friday February 12, 2010

Click here to read more

FESCA Annual Assembly

Location: Florence, Italy

13 Feb.

Our FESCA Annual Assembly will be held at the time of the World Congress, on Saturday February 13, from 10am until 4 pm. Further information will coming soon.

EUROPEAN SCLERODERMA DAY

Location: in member countries

29 Jun.

It has been decided on the last working meeting (Florance, 25-26 Jan, 2008) that launch of the EUROPEAN SCLERODERMA DAY will be on the 29th June, 2009. Until that time preparations are made for the launch.

Click here to read more