FESCA

Federation of European Scleroderma Associations

Upcoming events

3rd Systemic Sclerosis World Congress, 2014

Location: Rome, Italy
Date: 06 Feb.

Scleroderma Canada Congress, 2013

Location: Sheraton Hamilton Hotel, 116 King Street West, Hamilton, ON L8P 4V3
Date: 27 Sep.

World Scleroderma Day, 2013

Location: All over the world
Date: 29 Jun.

FESCA acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organizations, while the support of individual sufferers of scleroderma remains the sole remit of national organizations.

FESCA's objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care. To do this, FESCA facilitates collaboration among national associations to share ideas and projects, and works towards the evolution of a political, social, and medical enviroment that facilitates the achievement of the FESCA vision.

New research project on pregnancy and systemic sclerosis

22 May.
Dr Antonio Brucato, Chief of the Internal Medicine Department, Riuniti Hospital, Bergamo, Italy is, with 2 other main European Investigators, looking to involve women in the

New treatment being investigated for Systemic Sclerosis

11 Apr.

Systemic sclerosis (SSc) is a rapidly progressing systemic form of scleroderma for which there are currently no approved treatments.

Press release - FESCA shows solidarity with EURORDIS

13 Mar.
FESCA aisbl shows solidarity with EURORDIS as it issues a Joint Statement to sound alarm on Data Protection EU Regulation and amendments that would hamper rare disease research and health research

Invite your health professional(s) to participate in the EUSHNeT survey!

22 Nov.

 

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Clinical trials

14 Oct.

What is a clinical trial?

06 Feb.

The 3rd systemic sclerosis world congress will be held in Rome, on February 6-8, 2014.

Scleroderma Canada Congress, 2013

Location: Sheraton Hamilton Hotel, 116 King Street West, Hamilton, ON L8P 4V3

27 Sep.

The Scleroderma Society of Canada, together with the Scleroderma Society of Ontario, is pleased to announce that the 2013 Scleroderma Canada Congress is coming to Hamilton, On

World Scleroderma Day, 2013

Location: All over the world

29 Jun.

 

Scleroderma Day - Denmark

Location: Aarhus, Denmark

29 Jun.


This is how Scleroderma Day is celebrated in Denmark

Scleroderma Day - Spain

Location: Spain

29 Jun.

This is how Scleroderma Day is celebrated in Spain
29 Jun.

This is how Scleroderma Society, U.K. will celebrate Scleroderma Day

Scleroderma Day - Norway

Location: Norway

29 Jun.
This is how Norway will celebrate Scleroderma Day:

Scleroderma Day - Ireland

Location: Ireland

29 Jun.

This is how Ireland will celebrate Scleroderma Day:

International Scleroderma Day, June 29th

Location: All over the world

29 Jun.

Scleroderma Day will be celebrated across Europe, Australia, the USA, Brazil and other countries in order to raise awareness for the scleroderma and for people with scleroderma.

23 Jun.

For Scleroderma Day AILS is organising an Open Day for early diagnosis, at Gaetano Pini Hospital, in Milan and at the hospitals Sandro Pertini Hospital and Policlinico Umberto I Hospital