Scleroderma Day will be celebrated across Europe for the second time in order to raise awareness for the scleroderma and for people with scleroderma. You can see the activities from last year here.
Location: in member countries
Date: 29/06/2010
The Federation of European Scleroderma Associations will hold a stand at the EULAR Congress in Rome, stand n° C8-5, total 9 m2. FESCA will hold board meeting and all other members are welcome in the Congress where awareness will be raised for FESCA and the upcoming Scleroderma Day - June 29.
Location: Rome
Date: 16/06/2010 - 19/06/2010
For governments, politicians, doctors, the pharmaceutical industry, and the media, FESCA will be the main focal point for all enquiry. As the EU’s only independent, not-for-profit, focused, umbrella patient organization with deep expertise in Scleroderma, FESCA is in a position to achieve this.
Run with the motivation and energy of those whose lives are affected by the disease, FESCA has the support of EUSTAR and EULAR-PARE and disseminates expert knowledge while facilitating communications for all European Connective Tissue Disease stakeholders.
FESCA is a clearing house for patients and the medical community, serving as a conduit for the dissemination of funds in support of research and outreach from a multiplicity of sources. With complete transparency in support of research and outreach, FESCA operates in pursuit of a world in which everyone with Scleroderma receives appropriate access to a comparable standard of successful care.