- RARE DISEASE BLOG – INTERNATIONAL OPINION ON RARE DISEASES AND ORPHAN DRUGS
A new tool has joined the arsenal of instruments geared toward raising awareness and discussing the issues pertinent to rare diseases and treatments.
- 1ST SYSTEMIC SCLEROSIS WORLD CONGRESS
- European Scleroderma Day - June 29
The first European Scleroderma Day on the 29th June 2009 was celebrated in almost all of our member countries as it was decided by the FESCA in a year ago.
- The Edgar Stene Prize Competition
The Stene Prize winner 2009 from Finland: Emmi Myöhänen
- Scleroderma is among EULAR strategic objectives 2012
By 2012, EULAR will have strengthened activities in areas that are currently less prioritized, such as non-inflammatory and orphan diseases.