- EULAR CONGRESS 2011
- Survey into treatments for Raynaud's
Orion Pharma (www.orion.fi/en/), a pharmaceutical company based in Finland, would like to receive information (known as feedback) about Raynaud’s phenomenon from people suffering from this co
- European Scleroderma Observational Study (ESOS)
ESOS is a new study funded as part of the EULAR Orphan Disease Programme and co-ordinated by the University of Manchester in the UK.
- Characterization of Psychosocial Symptoms and Illness Perception in People with Scleroderma
Please send your answers for the following questions to Caterina Leite on following e-mail: associacao.apde@gmail.com. Or please follow this link to go to the survey link for your country. Thank you.
What does having scleroderma mean to you? How does scleroderma affect your life?
- SEEKING PARTICIPANTS TO FILL OUT A QUESTIONNAIRE ON UNDERSTANDING AND LACK OF UNDERSTANDING FOR RHEUMATIC DISEASES
Patients with any rheumatic disease are asked to participate in a questionnaire study on the internet.
- EULAR PARE Breakthrough Magazine
Click here to read article about Systemic Sclerosis World Congress.
- FINAL Patient Survey Reports
- Scleroderma in Childhood
For more information please take a look at attached files.
- RARE DISEASE BLOG – INTERNATIONAL OPINION ON RARE DISEASES AND ORPHAN DRUGS
A new tool has joined the arsenal of instruments geared toward raising awareness and discussing the issues pertinent to rare diseases and treatments.
- 1ST SYSTEMIC SCLEROSIS WORLD CONGRESS
