The Federation of European Scleroderma Associations just held a stand at the EULAR Congress in Copenhagen.
Annelise Roennow the international-FESCA contact from the Danish Association was responsible to organize the stand and the layout. The location of the stand was , stand NP 9 total 9 sq.m. (3 x 3) located in hall C5 where the following activities took place:
- Eular village including seating areas, history of the Eular society, non profit associations in the field of rheumatism and a scientific café
- Cyber café
- Annals of Rheumatology booth (Eular Journal booth)
- Allied Health Professional booth
- People with Arthritis and Rheumatism in Europe booth
Annelise placed Scleroderma Day posters on the walls of the stand, and on the table different information leaflets from FESCA and member associations and EUSTAR were available for those who needed more information about us and in relation to scleroderma. Also a big Roll-up promoting European Scleroderma Day was produced for this event.
FESCA would like to thank Annelise Roennow for her wonderful work in organising this stand. It was very difficult for her, as Annelise lives completely the other side of Denmark, and she worked very hard. It was a super job---prima! The stand looked lovely.
FESCA also like to thank all those on her team from Denmark’s young association, for their work at the stand over the four days, and making sure it was never left unattended. We were very pleased by the constant number of visitors at an event where there was so much to do.We would like to thank Annelise and all the Danish helpers from the local Assoiciation for their help organising and helping FESCA at EULAR.
Please see photos from the stand.
On Thurday, 11th June from 2 pm there was an unofficial FESCA working meeting for those who represented their countries and also took turns at the stand: Ireland, the Netherlands, Spain, Danmark, Cyprus and Hungary.
Ann Tyrrell Kennedy, acting president of FESCA held two very interesting and useful lectures at EULAR Congress on 12th June, Friday where the main topic was scleroderma . This was again a good opportunity to promote FESCA and scleroderma in the Congress which was the main objective of our assoiciation.
The title of the presentations:
1. Rare but not less severe – The challenge to care for people with rare rheumatic diseases (A. Tyrrell Kennedy, CEO and Acting President FESCA, Irish Raynauds and Scleroderma Society, Dublin, Ireland)
2. EXPLORING THE ROLE OF PALLIATIVE CARE FOR PEOPLE WITH SYSTEMIC SCLEROSIS (M.C. Lynch1, A. Tyrrell Kennedy2 1Development, Irish Hospice Foundation, Nassau St; 2CEO and Acting President FESCA, Irish Raynauds and Scleroderma Society, Dublin, Ireland)