Blog Archives for category Survey

2 surveys on quality of care and cross-border healthcare

The European Patients’ Forum (EPF) is the umbrella organisation representing patient groups at European level. In order to advocate effectively for… Continue reading »


Woman and pregnancy study

Pregnancy can be a challenging time for women with rheumatic diseases, from conception until the postpartum period. University of Nicosia in Cyprus,… Continue reading »

Scleroderma Support Group Survey

Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a… Continue reading »

Scleroderma Healthcare Report

Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013. The principal reason… Continue reading »

PROMIS – Quality of life survey

Vivek Nagaraja, MD and Dinesh Khanna, MD, MSc at the University of Michigan Health System, are conducting a piece of… Continue reading »

Survey on personal reaction on Scleroderma

EUSTAR and FESCA have developed a survey, in several languages, about the personal reactions of those with SSc to their… Continue reading »