Blog Archives for category News

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Latest newsletter from FESCA

We are happy to share with you the latest newsletter from FESCA. You can for instance read some inspiring stories… Continue reading »


Scleroderma app – now available for download

Throughout 2016, Project Scleroderma has been brainstorming new and innovative ways of helping the scleroderma community, in addition to the… Continue reading »

Mini newsletter from Fesca

Our latest newsletter, which is a mini newsletter on recent events involving Fesca is ready. Another newsletter on our members… Continue reading »

Actemra Looks Promising in Scleroderma

Encouraging results were seen for tocilizumab (Actemra) in the treatment of diffuse systemic sclerosis (SSc) in a proof-of-concept study by… Continue reading »

Scleroderma Healthcare Report

Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013. The principal reason… Continue reading »

2014 Fesca Newsletter

Please find below the latest FESCA newsletter with all sorts of stories from around Europe and some other interesting articles…. Continue reading »

A gender gap in primary and secondary heart dysfunctions in systemic sclerosis: a EUSTAR prospective study

The diagnostic rate of systemic sclerosis demonstrates a strong gender bias. EUSTAR performed recently a prospective observational study using the… Continue reading »

Inventiva receives positive opinion on orphan drug designation in the European Union for IVA337 – a treatment for Systemic Sclerosis (SSc)

With few approved drugs available in SSc, this approach could significantly improve the treatment options in the future. Dijon, France,… Continue reading »

Upcoming congress in Belgium

On October 18th, the “A.P.S.B. Association des patients sclerodermiques de Belgique” organise the 6 th FRANCO-BELGE of scleroderma on 2014,… Continue reading »

Pope Francis lays hands in blessing on FESCA Scleroderma Patients at audience in Rome

“It was an incredible joy for me,” said Maria Alice Correia, of Switzerland, of her visit to see the Pope…. Continue reading »