Blog Archives for category Scleroderma


Scleroderma app – now available for download

Throughout 2016, Project Scleroderma has been brainstorming new and innovative ways of helping the scleroderma community, in addition to the… Continue reading »

Press Release – Orphan Drug Designation Granted to Nintedanib for Treatment of Systemic Sclerosis, including Associated Interstitial Lung Disease

Today, Boehringer Ingelheim sent out a press release, announcing that, “… the European Commission (EC) and U.S. Food and Drug Administration… Continue reading »

Collaboration between FESCA, Scleroderma Society of Canada and Boehringer Ingelheim

In April, FESCA and the Scleroderma Society of Canada signed an agreement with Boehringer Ingelheim with the intention of working… Continue reading »


What is systemic sclerosis?

We are proud to announce that with support from 2 patients – one in Italy and one in Denmark –… Continue reading »

PRESS RELEASE – FESCA holds event in EU Parliament, June 2015

To celebrate World Scleroderma Day 2015, the Federation of European Scleroderma Associations (FESCA aisbl.) held the European Parliamentary event “Unveiling… Continue reading »

Interview on World Scleroderma Day 2015

Watch a specially recorded message for World Scleroderma Day 2015 by Ms. Ramona Kanters, founder of the patient support group… Continue reading »

Unveiling Scleroderma

  This World Scleroderma Day 2015 we will be “unveiling Scleroderma”. Organisations across the globe are taking part in the… Continue reading »

Actemra Looks Promising in Scleroderma

Encouraging results were seen for tocilizumab (Actemra) in the treatment of diffuse systemic sclerosis (SSc) in a proof-of-concept study by… Continue reading »

Inventiva receives positive opinion on orphan drug designation in the European Union for IVA337 – a treatment for Systemic Sclerosis (SSc)

With few approved drugs available in SSc, this approach could significantly improve the treatment options in the future. Dijon, France,… Continue reading »

Glossary of Scleroderma Terms

Often we catch a word related to scleroderma which we do not understand and makes it even more difficult to… Continue reading »