Scleroderma Support Group Survey

Do you have scleroderma? Are you interested in helping advance research on
scleroderma support groups? If so, please lend a hand by completing this short 10-15
minute survey!

Our team, which is comprised of international researchers; people with scleroderma; and
leaders from the Federation of European Scleroderma Associations, the Scleroderma
Foundation of the United States, and the Scleroderma Society of Canada are working
together to learn more about the experiences of scleroderma support group facilitators,
scleroderma support group members, and people who choose not to attend scleroderma
support groups.

Your anonymous answers to the survey questions will provide a greater understanding of
the important training and support needs of group leaders, as well as the reasons why
people with scleroderma either attend or do not attend support groups. The results from
this survey will be used to increase the accessibility of scleroderma support groups and to
structure these groups in a way that increases their ability to effectively meet the needs of
members.

If you have a few minutes to spare and are able to help with this exciting research project,
please click on the following link, which will take you directly to the survey:

https://survey.co1.qualtrics.com/SE/?SID=SV_cAdjVJSxLa0PHdH

If you have any additional questions or concerns about the survey, please contact any
member of our research team listed below:

MS. STEPHANIE GUMUCHIAN
MSc. Psychiatry Student, McGill University
Telephone: (514) 340-8222 ext. 6813; Email: sgumuchian@gmail.com

OR

MS. VANESSA DELISLE
PhD. Counselling Psychology Student, McGill University
Telephone: (514) 340-8222 ext. 6812; Email: vanessa.delisle@mail.mcgill.ca

OR

MS. MIA PEPIN
BSc. Psychology Student, Université de Montréal
Telephone: (514) 340-8222 ext. 8578; Email: mia.r.pepin@gmail.com

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