Blog Archives for tag scleroderma

Juvenile scleroderma inceptions cohorte

Dr. Ivan Foeldvari, Pediatric Rheumatologist and Dipl. biol. Nicola Helmus, Coordinating Study Nurse are working on this study which aims To learn… Continue reading »

New video for World Scleroderma Day 2018

We are very happy to show you the video made via Kill the Film, who we have worked with before…. Continue reading »

I attended the 5th Systemic Sclerosis World Congress

              On the 16th February 2018, I found myself on the steps of the… Continue reading »



      We invite you from all over the world to post a picture/video with smiles on social medias… Continue reading »


Scleroderma app – now available for download

Throughout 2016, Project Scleroderma has been brainstorming new and innovative ways of helping the scleroderma community, in addition to the… Continue reading »

Press Release – Orphan Drug Designation Granted to Nintedanib for Treatment of Systemic Sclerosis, including Associated Interstitial Lung Disease

Today, Boehringer Ingelheim sent out a press release, announcing that, “… the European Commission (EC) and U.S. Food and Drug Administration… Continue reading »


Woman and pregnancy study

Pregnancy can be a challenging time for women with rheumatic diseases, from conception until the postpartum period. University of Nicosia in Cyprus,… Continue reading »

IMPRESS 2 Study: International Multicentric prospective study on PREgnancy in Systemic Sclerosis

IMPRESS 2 Study: International Multicentric prospective study on PREgnancy in Systemic Sclerosis Patients with systemic sclerosis who are planning a… Continue reading »


June 29 is World Scleroderma Day – join us in Hand in Hand for a better future

Hand in Hand for a better future Scleroderma is an autoimmune disease that causes severe disability and can be life threatening…. Continue reading »


What is systemic sclerosis?

We are proud to announce that with support from 2 patients – one in Italy and one in Denmark –… Continue reading »