Blog Archives for tag scleroderma

ScleroSmile

SCLERODERMA WILL NOT TAKE MY SMILE – World Scleroderma Day 2017

      We invite you from all over the world to post a picture/video with smiles on social medias… Continue reading »

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Scleroderma app – now available for download

Throughout 2016, Project Scleroderma has been brainstorming new and innovative ways of helping the scleroderma community, in addition to the… Continue reading »

Press Release – Orphan Drug Designation Granted to Nintedanib for Treatment of Systemic Sclerosis, including Associated Interstitial Lung Disease

Today, Boehringer Ingelheim sent out a press release, announcing that, “… the European Commission (EC) and U.S. Food and Drug Administration… Continue reading »

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Woman and pregnancy study

Pregnancy can be a challenging time for women with rheumatic diseases, from conception until the postpartum period. University of Nicosia in Cyprus,… Continue reading »

IMPRESS 2 Study: International Multicentric prospective study on PREgnancy in Systemic Sclerosis

IMPRESS 2 Study: International Multicentric prospective study on PREgnancy in Systemic Sclerosis Patients with systemic sclerosis who are planning a… Continue reading »

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June 29 is World Scleroderma Day – join us in Hand in Hand for a better future

Hand in Hand for a better future Scleroderma is an autoimmune disease that causes severe disability and can be life threatening…. Continue reading »

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What is systemic sclerosis?

We are proud to announce that with support from 2 patients – one in Italy and one in Denmark –… Continue reading »

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Videos from 4th Systemic Sclerosis World Congress

More than 300 patients participated the patient’s congress at 4th Systemic Sclerosis World Congress in Lisbon, February 18-20, 2016. We… Continue reading »

The Men’s Room at the World Scleroderma Congress

In scleroderma the majority of patients are women, so that it looks as if there is less attention to men… Continue reading »

Actemra Looks Promising in Scleroderma

Encouraging results were seen for tocilizumab (Actemra) in the treatment of diffuse systemic sclerosis (SSc) in a proof-of-concept study by… Continue reading »